The chemo treatment he received on Monday has given his body quite a hard time. He hasn't wanted to eat anything all week, saying that his tummy was always full. Never mind that he just woke up and hadn't eaten all night or the day before. It has even been a struggle to get him to drink anything. He has already begun losing weight, and the medical staff has talked about the possibility of needing another feeding tube to supplement for what he isn't eating. Thankfully, he woke up this morning with one big appetite and has been grazing on things all day. I just hope it's enough to keep his weight in check, and his body healthy.
Another side-effect we've been seeing is his attitude. It is blazingly worse, and he has hours-long tantrums over things like changing the color of a cartoon's dress (that was yesterday), and the color of the cheese he is eating (that was this morning). We've just been taking everything in strides...and when that fails, we just wait for him to tantrum himself to sleep and hope he doesn't wake up crying about it. Luckily, he takes a lot of naps, too. ;)
The other two side effects are jaw pain and nausea, both contributing to him not wanting to eat. He has medicine for both, but it is another struggle (one I could write a whole post about) to actually get him to take them. I've been successful twice, so far, so things are improving a little.
For a bit of good news, Mason is now taking walks again...long walks, where he begs to go farther and farther (thanks Vili, Darl, Mom, and Dad, for taking him all those times!). He's not too tired to go anymore, and begs people to take him, even though it is the dead of winter. He's definitely making up for lost time, and I am glad for it.
Once again I will not be going to Mason's appointments tomorrow since I still have a nasty, congested cough, and wouldn't dare set foot in the Hematology/Oncology center with it. In case you think I'm just being a baby (am I the only one who thinks this?), it would be pertinent to know that with the treatments given there, white blood cell levels can get dangerously low...and those are the good guys who fight off infection. A simple cough could have the power to kill. This is true for Mason at home, as well, but I'm stocked with lots of soap and sanitizer...and we wash our hands like crazy nowadays. We also do a lot of hoping and praying that nothing will be passed on to him. So far, it hasn't. THANK GOODNESS!
Wish us luck for this coming week, and the first of four times Mason will have to be accessed. Latu will be taking him in for me, so if it goes terribly again, you can be sure something will be done about it THAT DAY.